SJDSF believes that individuals with autism have the right to dignity, acceptance, and opportunities that allow them to make meaningful contributions to society
As the world observes World Autism Day, the Shiranee Joseph de Saram Foundation (SJDSF) is calling for greater awareness, understanding, and inclusion of neurodiverse individuals in all aspects of society. The foundation, named after Sri Lanka’s pioneering speech therapist Shiranee Joseph de Saram, continues its mission to break the stigma surrounding autism and provide critical support to individuals and families affected by the condition.
Autism, a neurodevelopmental condition, manifests through unique social interactions, learning styles, and communication patterns, as well as a preference for routines and specific interests. Despite global advancements in research and awareness, misunderstandings persist, often leading to social exclusion. The SJDSF aims to bridge this gap by advocating for greater acceptance and fostering opportunities that allow neurodiverse individuals to thrive.
Understanding Autism and Its Challenges
According to Praveena Joseph de Saram, neuroscientist and daughter of Shiranee Joseph de Saram, autism is caused by genetic variations; either inherited or spontaneous. “Recent research by Mt. Sinai Hospital in New York, involving 150,000 individuals, has identified 70 genes strongly linked to autism and over 250 with significant neurodevelopmental ties,” she explains. “Autism is a lifelong condition with no cure, making it imperative that we address support systems across the entire lifespan, this includes training medical professionals, educators, employers, first responders, and even the justice system.”
SJDSF believes that individuals with autism have the right to dignity, acceptance, and opportunities that allow them to make meaningful contributions to society. Through its initiatives, the foundation works tirelessly to build an inclusive culture where neurodiversity is not only acknowledged but celebrated.
Foundation Initiatives Driving Change
- Supported Employment Programme: This flagship initiative provides neurodiverse individuals with structured employment opportunities. The program incorporates employer training and ongoing support, ensuring long-term, meaningful employment that fosters economic independence and social integration.
- Thrive Sheltered Workshop: A dedicated space where neurodiverse individuals gain practical skills, build confidence, and develop a sense of community. Products crafted at Thrive are Good Market Certified, ensuring quality and ethical production.
- Public Awareness and Education: SJDSF actively challenges misconceptions about autism through awareness campaigns, educational materials, and community outreach programs.
- Family and Caregiver Support: Families often struggle to access adequate resources and support.
The foundation provides caregivers, educators, and community members with accurate information and strategies to help neurodiverse individuals achieve independence and employability. Additionally, the foundation runs programs that prioritize the well-being of parents and siblings.
“Our commitment is unwavering; we believe that everyone deserves to live with dignity and have equal opportunities, regardless of neurodiversity,” says Consultant Speech Therapist Nayanalie Dassanayake, who leads SJDSF’s program development. “We must continue breaking the stigma surrounding autism and work toward a truly inclusive society where no one is left behind.”
SJDSF invites the public to support its mission of creating a more inclusive world. The foundation offers free services to families in Sinhala, Tamil, and English. To learn more about its initiatives or get involved, visit www.sjdsf.lk or call 0112819310.
